Fieldnotes: Disability and sexuality

On the DS-HUM list, a link was recently posted to a wonderful article by Mark O'Brien on disability and sexuality:

In 1983, I wrote an article about sex and disabled people. In interviewing sexually active men and women, I felt removed, as though I were an anthropologist interviewing headhunters while endeavoring to maintain the value-neutral stance of a social scientist. Being disabled myself, but also being a virgin, I envied these people ferociously. It took me years to discover that what separated me from them was fear -- fear of others, fear of making decisions, fear of my own sexuality, and a surpassing dread of my parents. Even though I no longer lived with them, I continued to live with a sense of their unrelenting presence, and their disapproval of sexuality in general, mine in particular. In my imagination, they seemed to have an uncanny ability to know what I was thinking, and were eager to punish me for any malfeasance.

Whenever I had sexual feelings or thoughts, I felt accused and guilty. No one in my family had ever discussed sex around me. The attitude I absorbed was not so much that -- polite people never thought about sex, but that no one did. I didn't know anyone outside my family, so this code affected me strongly, convincing me that people should emulate the wholesome asexuality of Barbie and Ken, that we should behave as though we had no "down there's" down there.

.....

Frustrated by my inability to get The Answer, a blinding flash that would resolve all my doubts and melt my indecision, I brooded. Why do rehabilitation hospitals teach disabled people how to sew wallets and cook from a wheelchair but not deal with a person's damaged self-image? Why don't these hospitals teach disabled people how to love and be loved through sex, or how to love our unusual bodies? I fantasized running a hospital that allowed patients the chance to see a surrogate, and that offered hope for a future richer than daytime TV, chess, and wheelchair basketball. But that was my dream of what I would do for others. What would I do for me?

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